Waterbury - Bob Veillette is a journalist living in Connecticut who suffered a massive stroke in April 2006 that left him with locked-in syndrome — a condition that leaves a person locked inside their body, paralyzed below the eyes but totally cognizant of the world around them.
Before the stroke, Bob was an avid runner and well known in the Waterbury, Conn., area as an accomplished jazz pianist. He worked at The Republican-American newspaper in Waterbury for more than 40 years as a reporter, city editor and most recently, managing editor.
Bob’s family brought him home in October 2006, knowing that doing so would mean they would be responsible for the entire cost of his care. Sixteen months later, after a year on a waiting list, Bob finally was accepted in January 2008 into one of the few state Medicaid programs that help pay for home care, but his family still must pay thousands of dollars each month in care-related expenses. This Web site is designed to be a place to find information about Bob, his condition, and the efforts to help him and his family.See About Bob »